We survived 2016 and are celebrating in 2017! Thank GOD our end-of-treatment and most recent MRI scans, lumbar punctures and labs are clear. Thank you for keeping our Sunshine Girl in your prayers!

It’s hard to believe that it’s been a little over a year since diagnosis and so amazing to see her progress! To hear her crack jokes and come out of mutism; to watch her learn to sit up and now kick a soccer ball; to see her feed her baby sister when we used to spoon feed her; to have her walk to and use the bathroom completely on her own versus wearing a diaper. And so much more. These small victories make my heart leap; we celebrate it all! 

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​As promised, Soleil and Mason got their big playdate at KidVentures, the beginning of the year. It was heartwarming for Soleil and Mason to be surrounded by all the love and support. So good to see familiar faces we had not seen in quite a while, as well as meet some new ones. It was important for the kids to meet the special folks that have been praying for them in their hometown.

We also went on Soleil’s fun-filled Make-A-Wish trip to Disneyworld! Wish upon wishes were granted including a complete makeover at the Bibbidi Boppidi Boutique and a meet-and-greet with Jane (Tarzan was away in the Jungle)!

Soleil is strong and is only getting stronger! With God’s grace and your faith, we are recovering and healing. Side effects to treatment have been hearing loss from the Vincristine and neuropathy – but just this week, the neuroplasticity is showing positive signs — Soleil’s nerves are waking up and showing progress! At home, we have been learning all we can to optimize our health as a family. To help build her immune system, we are so grateful to have Integrative Osteopathic Pediatrician, MaryAnne Haskell, D.O. to guide in optimizing Soleil’s health, as well as our family pediatrician Dania Lindenberg, M.D. who has been there since birth, our Rady Children’s Team, and especially her Therapists at Calfornia Children Services. 

What’s Next? Check-ups at Rady Children’s will include MRI brain and spine scans, lumbar punctures and hearing tests every three months until she is 10. Please kindly continue to pray that her scans and tests are negative/clear with no evidence or recurrence of disease 🙏
The power of prayer. We continue to pray that HE blesses you all ten-fold. 💗