Thank you family and friends for the prayers over the weekend! Again, we hope for your extra prayers as Soleil goes in for a brain MRI this morning.

Last Friday, she woke up with a persistent headache and vomiting, May and James brought her to the ER. Instead of starting her second cycle of chemo, she went into the operating room to relieve the built-up pressure. Though a setback, thank God we were able to address the Hydrocephalous and ETV prior to the next round of chemo. 

The neurosurgeons were able to repeat her Endoscopic Third Ventriculostomy (ETV) – and avoid a shunt – to relieve the pressure in her brain. We pray that the ETV will remain open and patent for life and that her body is able to manage the absorption  of her cerebrospinal fluid (CSF).

While in the OR, she had a reaction that caused her to bottom out -she needed chest compressions and a blood transfusion. As a result, she was intubated and went to the ICU to clear the pulmonary edema. Over the weekend, she was extubated and switched to Bipap. 

Each day she is recovering and clearing the fluid; yesterday’s chest X-ray revealed slight haziness on the right lung which we hope has cleared overnight. Still pending results from this morning’s X-ray. Our Sunshine Girl is sprinting and hopes to be off the machine today. She is so determined to do what it takes to get out of the hospital:

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Soleil is scheduled for an MRI at 8:30 this morning. Asking for your prayers and positive vibes that our girl is in the clear! We LAVA YOU!​

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